C. De Liti
Four more quotes from you, Mr. Schofield. I'm not sure if you have deleted (or "changed") these ones yet, but they're certainly your words:
1. "I have had to recall a memory of once trying to throw Susan out of our moving car because I was so angry."
2. "Jani saw some of my violent rages. She has seen me hit her mother and her mother hit me back."
3. "I could feel the anger building inside of me, but be unable to stop it. Even during my most violent rages, a small voice inside my head would be telling me "You are going to regret this, Michael." I could see the fear in Jani's eyes. I could see in the pain and anguish in Susan's eyes. But I could not stop. It was a bizarre experience. I was rational, yet not in control of my emotions. There was so much rage in me that I wanted to hurt. Because I was hurt. And I wanted the world to feel my pain. I suspect that some variation of this is what Jani experiences."
4. "I suspect that this is also what serial killers experience. The only difference between them and me is I eventually listen to that voice telling me what I was doing was wrong."
Might this too have had some effect on Jani becoming "incurably" "diseased"?
It is a perfectly reasonable question.
Sunday, October 11, 2009 - 10:23 AM
C. De Liti
Two quotes from Michael Schofield:
1. "I also don't know what this person is referring to about me deleting parts of my blog. *****I have never deleted anything I have written.***** All my blog entries are just as they were when originally written. The only thing I delete is comments."
2. "Have I deleted or altered any blog entries? No (with the exception of removing some names). If you are referring to the old "about me" page, which I suspect you are, then *****yes I did change that.*****"
You didn't just "change" it, as you very well know! You deleted it entirely!
It was the most prominent part of your blog - your own considered self-presentation. Your summary of your life with Jani.
And here's part of it:
- Quote:
"We tried everything. Positive reinforcement. Negative reinforcement. Hitting her back (I won't tell you how many people told us that all she needed was a good beating). We took all her toys away. We gave her toys away. We tried starving her. We did EVERYTHING we could to try and break her. Nothing worked.
Even then, it did not occur to us that our daughter was mentally ill. Now I wonder who was really delusional. Susan and I held fast to our belief that Jani was just a misunderstood genius.
Then Bodhi was born.
The violence became so bad that at times Susan and I both lost it and hit Jani as hard as we could. We hit in impotent rage."
- End Quote.
Ergo: You lied when you said "I have never deleted anything I have written.", and you lied when you said "I also don't know what this person is referring to about me deleting parts of my blog" (because clearly the most prominent part of the blog is part of the blog.)
Now I want to know whether the part I have just quoted was also a lie, in part or in whole. (Please specify exactly which parts are true.) If it was all a lie, then I want to know why anyone should ever take anything you say here seriously again.
And if it was in fact the truth, then I want to ask you and your readers:
i) whether or not it counts as evidence of severe child abuse.
ii) whether or not it might have contributed very strongly towards Jani's alleged disease.
Because what you describe there was very much more than "breathing on her". Wasn't it?
The Truth Hurts, Mr. Schofield, at least at times, I know. But please try to be truthful, at long last. Because your lies are hurting not just me and your readers, but (much more importantly) your daughter -- and many other children too, in the wake of the Oprah show.
Sunday, October 11, 2009 - 10:29 AM
Nor
Michael,
I recently sent you an email describing my experiences with my 9yo daughter's bipolar disorder and I think it's wonderful that you plan on reading AND answering all of the emails!
You have a wonderful way with words and they are so true. Thank you for writing what you wrote about fathers/men and accepting diagnoses. I'm fighting my ex-husband right now to maintain full custody. He is in total denial of her illness and wants her off of meds as well as wanting to gain custody. I thought about sending him the link to this blog but I know it won't help. I've given him so much information and books and websites and he still refuses to accept it. My father was the same way up until my daughter was admitted to the hospital for a second time this year.
It IS amazing how many people claim to know OUR children and are determined to tell us how to "treat" them. I've had a few people (including my father) insinuate that my daughter was possessed and others just tell me to "get saved" and my trouble would be gone. II wrote about it in my own blog.
I too have been threatened with CPS and told (by a hospital) that I needed to file unruly charges against my 9yo when she was at the height of her instability. My daughter has been on just about all the meds your daughter as been and Seroquel too, made her much worse. I've battled with doctors and myself about giving her such powerful medicine with such strong possible side-effects.
I was more than thrilled that Oprah did a show on a child with a serious mental illness. I was in contact with a producer of the Oprah show several years ago, fearing that it would only exploit my daughter but desperate to raise awareness and hoping there would be a doctor that could treat her. Obviously, my story wasn't sensational enough. I hope that she continues to do more stories on our children. There needs to be more awareness and more research done.
Blogging has proven to be therapeutic for me and I hope that it has offered the same benefits to you. I find it unbelievable that there is no organization that can offer your family respite. We are involved with an organization that offers respite a couple weekends out of the month. We never took advantage of it because my daughter was improving and they wouldn't allow us to meet the respite workers (the social worker would take and pick our daughter up--not allowing us to ever meet).
I'm not a very religious person, in fact it bothers me when people spout their bible versus at me, but my family and I do believe in positive thought. My daughter saw some of the Oprah show and she truly understands and relates to Jani's journey . My family and I will continue to send our positive thoughts your family's way.
Sunday, October 11, 2009 - 10:38 AM
C. De Liti
Just quoting you - presumably that's allowed (These are your own words, from an undeleted, unchanged entry on your own blog):
"The TV was set to Animal Planet and was showing "Human Prey," a show about people who have survived wild animal attacks by sharks and lions (in this case sharks). Computer imaging showed what a Great White Shark does to a human body. Since Jani was barely registering my presence, I felt desperate and wanted to teach her, to try and engage her. I could feel her slipping away. I seized the sharks, explaining to her why large predators always violently shake their prey rather than trying to eat it alive. I explained that the shark was shaking the computer generated man because it wanted to break his spine, because living prey fights for its life, hitting, kicking, biting, and, in the case of humans with opposable thumbs, going for the eyes. This makes consuming living prey a bit dangerous. Better to kill it and be able to relax over the kill."
Sunday, October 11, 2009 - 10:40 AM
Michael Schofield
Nope, those are all still there. Yes, I had problems with anger before I was on Lexapro, which I can say has changed my life. Did I make mistakes? Absolutely. Was I violent all the time? Not at all. What I wrote is what happened. Remember that Jani has seen legions of doctors, psychologists, social workers, not to mention that she was always out in public. So had Jani been abused it is likely that one of the hundreds, even thousands, of people who have seen her over the years would have noticed something (you would hope).
Am I proud of having issues with violence before being on Lexapro and in therapy (although the Lexapro has been more valuable)? Of course not. It is my biggest regret. I have blogged about all of this and it is still there. I am not trying to hide anything. But do I think I caused Jani's schizophrenia? I wish I could say that I did, but no, I didn't. If I had caused this, that would be great because it would be easy to fix. But no such luck.
Hope that answers your question. I have said the same thing over and over again, and I don't know how many times I can keep saying it. You claim to have read every one of my blogs. If you had, you would know that. I appears that you are accusing me of deleting parts of my blog without actually checking to see if I have. I invite you to read through them again and you will see that all these issues that you have brought up I have already brought up. As I said in this last blog, I am not trying to hide anything here. I didn't write something and go "Oh, crap! I shouldn't have written that." Other than the "About me" page where the quote you keep listing comes from, I have not changed anything (and I only changed that after more than 3 months, long after people like you "discovered" it. I have explained the "starvation" as being my overdramatic way of saying how pediatricians told us that if she wouldn't eat what we put on the table in front of her, we should not give her anything (we stopped this after a day). I have explained the "breaking" referred to us being told by doctors that we needed to be stricter. And "hitting her as hard as we could" should obviously be me being overdramatic again, since given the fact that Jani is seen by so many people and doctors, I think one of them would notice the injuries that would come from actually hitting a child as hard as we can. What that line actually refers to is spanking her, which was definitely a mistake.
I don't know what else I can tell you, Liti. I really don't appreciate having to take the time away from writing back to the people who have written to me to share their stories and playing with my kids.
Sunday, October 11, 2009 - 10:41 AM
Michael Schofield
Thank you, Nor. Yes, I am trying to get back to everybody. I do read every email and if you shared a story about your own experiences I guarantee you I will get back to you. We need each other. I want to build a network of parents who can support each other.
Sunday, October 11, 2009 - 10:46 AM
C. De Liti
" But do I think I caused Jani's schizophrenia? I wish I could say that I did, but no, I didn't. If I had caused this, that would be great because it would be easy to fix. But no such luck"
That's not an answer, Michael. All you're giving us is your own opinion (your own self-protective opinion) of the effects of your own violent behaviour, but your opinion is not necessarily the God-given truth.
It's clear to most people that you did cause it, at least in large part, and that is indeed relatively good news; because that does indeed mean that it is relatively easy to fix. As long as you look at your own behaviour honestly, as long as you stop drugging her into submission, and as you long as you cease -- at long last -- harrassing her to distraction; see below.
Elsewhere you describe putting your fist through walls while Jani begged you to stop. These things do -- demonstrably -- affect the health, wellbeing and development of a tiny growing child. Of course they do.
But it's not just (or even mainly) your physical violence, although - as you now admit - that violence was extreme, frightening, and often repeated. It's your emotional violence, which if anything is even worse and more damaging, and which is documented in practically EVERY post on this blog.
For instance, the truly appalling Shark Story (reposted above), told to Jani as she awoke, bloodstained and groggy and helpless, from a drug-induced stupor... Do you think that helped her, in any way? I don't. On the contrary. And why did you do it? Because - as you yourself say - you were "desperate". You were "panicking". You were needy, terribly needy. And you wanted your needs attended to, by her, immediately. Because she was not paying you any attention. (Her needs, and her wishes, were secondary at best.)
When I refer to emotional violence, I mean above all the incessant "attention" you pay to her -- the pestering, day in day out, the harassment, all the time, literally without a break (except when she's in hospital). The poor child is never once allowed to be alone, never once allowed to be herself, never once allowed to discover what the hell it is that she is, or could be, or is becoming, or might eventually become. You are always always always in her face, and she clearly very frequently hates it. (Who wouldn't? Really: what healthy human being wouldn't?) No wonder she flies off the handle! No wonder she hits you! No wonder she retreats into imaginary worlds with imaginary friends!
Your response to all that? To tell her she's "schizophrenic", to tell her i's her "voices", and to drag her and drug her into submission when she objects, vehemently, as she should. (She is not just intelligent; she is also exceptionally brave.)
That's what I mean by emotional abuse, Michael. And you call it love. It is not love. It is something else. It is narcissistic neediness. It is using someone else for your own purposes while ignoring her own clearly-expressed needs and wishes.
Do you know what any lawcourt would call it if you did that to an adult rather than to a defenceless child? They'd call it stalking. Because that's what it is. And stalking has been known to drive the victims mad. Even adults.
But they usually recover quickly when the stalking stops. (If it ever does.)
Sunday, October 11, 2009 - 11:23 AM
Nor
Michael...Please allow me to respond to this De Liti person....
Unless you, De Liti, have experienced living with a child with mental illness, I don't think that you can insinuate Michael's response to his daughter's illness as anything more than human. This family has been living a surreal life for 7 years and the lack of sleep, incessant instability and frustration with the illness, doctors and treatment has to take it's inevitable course on Michael and Susan. In spite of this, they are doing everything within their power to keep their family safe, in a stable environment, and in tact. Every person has their own way of dealing with stress and turmoil...some more effective than others. I don't know any parent or person that can live through this and maintain their own sanity. Michael and his wife are exception and remarkable people.
I've just begun reading this blog but you're proving yourself to be a nuissance and a sh*t starter. Your close-mindedness is sad. Find someone else's blog to comment on, with views similar to your own.
Sunday, October 11, 2009 - 11:24 AM
Jennifer
Hey Liti, None of care about your wild obsession with Michael and his family. Find something more productive to do with your time. If you have anything else. Try unplugging your compute and get out of the house for a while. You are wasting your time and energy. You just don't get it, do you? You are not helping anything. Go harass someone else. Try volunteering your time with children who need help. Are you even a parent?
Michel, I am only responding to this person because I don't feel that with all that you have to worry about, you should have to give this person another minute of your time and energy. Lets all just ignore Liti and not even respond anymore. Eventually he/she will get bored and hopefully go away...
Sunday, October 11, 2009 - 11:41 AM
Michael Schofield
Nor,
Thank you, but this person is not capable of seeing reason. Apparently to him/her, teaching your child about sharks constitutes abuse. As you can see, I have tried to respond to his/her concerns but there is no point. We need to ignore him/her and move on to the important business of helping our children.
Over the last few days, I have been going through the crush of emails post Oprah. I am picking out those like yourself who have or are experiencing mental illness in their children. Out here in California, we created and beta tested a closed online group where parents could not only share their experiences and gain support but also send emergency requests for help if necessary. My goal is to expand this nation wide. I plan to write back to every parent and adult schizophrenic who wrote to me and ask if they would be interested in joining such an online support community. After the failure of the system to help so many of us, I have come to believe we have to help each other, so I want to get us all together as soon as possible.
In the meantime, just ignore De Liti, who has not accepted my offer to email his/her concerns to me but continues to do so publically, which reveals his/her intentions. Notice, however, that he/she is alone. This is how people like this get attention. It is sad that he/she is wasting life in front of the computer rather than actually trying to do good in his/her own community.
Sunday, October 11, 2009 - 11:45 AM
KEM
Michael,
I rarely watch Oprah (Four kids...2 jobs), but I am so glad that I happened to see the show about your family's experience. Since then, I have read practically every blog post on your site. You really have a gift for writing, and unlike those people out there who attack you for putting it all out there, I so appreciate that you are brave enough to show that you are a human being with all the emotions that come with raising a child with special needs.
I have a seven-year old daughter with autism, and although I can't say that we have experienced anything like what your family has gone through, I know what it feels like to agonize over what the future holds for my child. It is a "before and after" in my life - there was life "before" autism; there is life "after" autism. Like you, we were overwhelmed in the beginnng by what my husband and I sometimes refer to as the "cult of autism" that told us that everything from diet to immunizations to metal-poisoning to vitamin-deficiency was causing our toddler to not talk or socialize with us. We don't in any way, shape, or form begrudge others for the choices they have made with their children who have autism, but it was a life-changing day when we decided that instead of chasing this cure, we were going to enjoy our daughter as she is.
Marcel Proust talks about the true voyage of discovery as "having new eyes." I like to think that this is what the road to raising a child with special needs is about - "having new eyes." And at the end of road, I like to think that I will understand how privileged I was to get to experience that.
I look forward to reading your future posts. I think it is wonderful that you are providing this outlet to other parents of children who have mental illness. And I think it is wonderul that you are working to change society's perception and treatment of individuals who deal with these illnesses. The change is long overdue.
Sunday, October 11, 2009 - 11:46 AM
Fellow Parent
Hi Michael,
I'm a mom of two girls, and a child of a severely depressed and unstable mother. I'm also married to a man who has Panic Attack Disorder. I watch my children carefully for signs that they may have inherited either of the illnesses, so far so good - they are happy and healthy. Thank you for bringing childhood mental illness to the national consciousness. The next step may be to realize that there are many children, like yourself (and me), of mentally ill parents who need to reach out and connect as well. I read your blog for news of how you are coping, as well as for how Jani is progressing. Thanks for your honesty.
Sunday, October 11, 2009 - 12:09 PM
C. De Liti
Nor wrote:
"Unless you, De Liti, have experienced living with a child with mental illness, I don't think that you can insinuate Michael's response to his daughter's illness as anything more than human."
I never denied it was human, Nor. It's perfectly human, of course it is. How could it not be? (What else could it possibly be?) That doesn't mean I have to either approve of it or ignore it.
"This family has been living a surreal life for 7 years"
Yes. Do you think the mental and emotional and physical violence Jani has been subjected to in her formative years (both as a direct victim and as a witness) might have had something to do with that surrealness? I mean that question very seriously. What do you think?
"and the lack of sleep, incessant instability and frustration with the illness, doctors and treatment has to take it's inevitable course on Michael and Susan. "
Yes. I'm not demonising them, I'm trying to help them by calling their attention to some truths. Bexcause I don't see how anyone can be helped with untruth. Like Jani, they too are human beings, and they too are suffering . They too desrve help. When will they get some actual help, rather than incessant tears and prayers and gasps of approval for everything they do? And if my tone is now angry and impatient, then that might have something to do with the fact that nearly everything I've posted here has been deleted, even when it was neither impatient nor angry.
"In spite of this, they are doing everything within their power to keep their family safe, in a stable environment, and in tact."
I hope so. But sometimes to achieve those things you have to look very steadily at the truth. And sometimes, as Michael himself says: The Truth Hurts. Such is life, sadly.
"Every person has their own way of dealing with stress and turmoil...some more effective than others."
And some are very noticeably ineffective, for seven years or more. Then it's surely time to consider other possibilities. Don't you agree?
"I don't know any parent or person that can live through this and maintain their own sanity. "
Well, that's the thing. I don't think Michael and Susan's way of raising Jani has been entirely sane. I'm not being mean; see the posts above about the physical and emotional violence. But people can be temporarily insane and then regain their sanity. This is where I differ from Michael about Jani, for instance: he heeps insisting she has a "disease" that is "incurable" but can only be controlled by drugs. I've seen little or no evidence to support that assertion. The drugs are clearly harming her. And in any case this alleged disease of hers is just a label for a set of behaviours, which take place in a certain family situation in a certain social situation. Unlike cancer or mumps, there is absolutely no medical basis for that pseudo-diagnosis (that mere label). It explains absolutely nothing, and the very best the the drugs can do for her is pacify her, i.e., dope her into submission.
I don't think anyone is helped in the long term by being doped into submission. not Michael, not Susan, and not Jani. Do you agree? A lot of Michael's suffering for example, is caused by his incessant battles with the terrible US healthcare system. His suffering and his anger are, at least in part, socially-induced. That's undeniable. And I don't see why it should be denied in Jani's case. Do you?
"Michael and his wife are exception and remarkable people."
They could be, if they had a chance and if they gave themselves a chance and if someone would seriously help them, rather than encouraging them in their worst habits and their most self-destructive behaviour. So could Jani.
Medicine is social or it is worse than nothing. A sick society is inevitably going to produce a lot of sick people, and the USA in 2009 is clearly a very sick society. (The state of that health service... just for instance.) Michael and Susan have my sympathy, sincerely, as does Jani. Someone should help them. Seriously. Very seriously. And *uncritical* support is not helping themm one bit. On the contrary.
We have to try to tell the truth, Nor, even if it hurts at first. What alternative is there?
Best wishes,
De Liti.
Sunday, October 11, 2009 - 12:13 PM
karendotcom
Michael,
The donate link is working now (
http://www.janisjourney.org./) , it wasn't last night.
I agree with the commentor who said you should write a book. You are an excellent writer and you have a powerfull story to tell. Mental illness needs more advocates. Does anyone reading this blog have contacts with a publishing house?
That C. De Liti person is way off base, sorry you have to read that sort of stuff.
Best wishes for you and your family.
Sunday, October 11, 2009 - 12:15 PM
C. De Liti
Michael Schofield wrote:
"In the meantime, just ignore De Liti, who has not accepted my offer to email his/her concerns to me but continues to do so publically, which reveals his/her intentions."
My intentions are the same as everyone else's here: to address publicly what you have posted publicly on this public blog, of your own free will; because it is a matter of great public interest, and you are anything but publicity-shy yourself.
Unlike some, though, I have not joined any fanclubs, neither here nor anywhere else. Nor am I obliged to do so. Nor am I obliged to agree with everything you say or do.
Best wishes,
De Liti
Sunday, October 11, 2009 - 12:27 PM